Skip to main content

Gennie-beanie

Tomorrow it has been 6 years since my daughter Gennie's passing.   My heart dreads this day. A day I wish I could erase.  I hate cystic fibrosis.  A disease which I knew little about besides meds, therapy and medical appointments.  Quickly I found out this disease can take a child from giggles to her grave.

My baby girl was only 3 years old
 Just a baby waiting to grow.  She held her first tomato just the day before.  That week before hunted Easter eggs and her basket still full of candy. Her bunny laid still on her bed.
As if the wind wisp her out of arms like a balloon drifting to heaven.  Helpless us how I felt as I handed her to paramedics.  Watching helplessly. 
I ask god many nights clear the moments of this day. Six years later I still hear her giggles and her bunny now sits on a shelf.
I've been ask why I allowed myself to love a child that was dying.  Never once did I actually think she would die and c.f. was this evil of an disease.   I've been questioned still questioned why adopt a sick child.
Sage now name Greyson is a sick boy.  Our son.. We fell in love with him instantly like we did Jake and Gennie.  Something about him and each if oue adopted children.  We felted inside they were meant for us to love them.  Someone ask why add grieve to your family again?? Why disable or sickly children?  This can make any person defensive or what to argue.  Turning away and not answering back is not
 me. 
Sometimes people who have not adopted or care for a child with a disability would understand.  Adopting a child any child it is not easy.   Adoption should not be of pity or that you are saving a lost orphan.
Some nights I sleep little, eat last and read the same books over and over.  I sing to my kids and I can not carry a tune.
I am where I run from super market to super market in search of unicorn and catacorn cereal. I've learned pouring another cereal in an empty box does not trick my kids.  Our kids are smart.
Some nights I've talked to several of my grandkids calling to say good night to our younger kids.
I learned wach of our children love different jelly.  Some like bread some bagels.  Each different, each unique, each perfect. 
Tomorrow I will rise when I want to sleep the day away. Pull up the blanket and sleep.  Tonight I'll buy donuts, sprinkles and all .  Tomorrow I'll drink my tea and  watch our children get a sugar buzz from donuts. 

Comments

Popular posts from this blog

Full of emotions today

I am get back to blogging our journey this week and share some photos and our journey. Today I found myself missing our new little ones.  I wonder if they know we are coming back for the both of them.  Many tears as we walked out the door and said our goodbyes. This adoption has been a hard one for many reasons.  Updating documents and not knowing which child we were meant to adopt.  Honestly I just did not know what to expect once we were there. I knew this time deep inside I feel nervous and also excited.  With prior adoptions things felt so much differently than this one.  Maybe because this journey has been also a year in waiting. When we first met Barbara in hopped a little girl full of life and smiles.  As I watched her I noticed she was as nervous as I was.  But shortly we got to know one another.  I knew then inside as she sat across from us that this was our child, our daughter.. I felt inside love for a child I only met for...

USCIS approval and updates

Currently we are gathering up our documents once again times two. So two sets of everything means double the funds again.  Heart breaking to start from the beginning with documents.  But we are steps ahead with our Home study and our USCIS approval.  The USCIS approval is the most important document needed in our Dossier. This has been a very difficult week, yet another little girl passes away yesterday.  My heart cries out again for the parents and family.  After the first little girl and now another it breaks one's heart.  On the 25th of April it will be now 5 years since the death of our daughter Gennie~beane.  I wished I could hold her once again in my arms.  I tell all the children about Gennie and how precious she was.  Katya ask me each night about Gennie and if she is there still in Heaven.  Hard to explain to a child that children do die with out scaring them.  Jake Gennie's biological brother also has Cystic Fibrosis...

Medicals

Medical exam complete but we have to update all blood work, TB test also needs to be updated and also a letter from the American Embassy needs updating.  All documents have been cleared for approval and these last documents will allow our Dossier to be submitted in August.  Normally it takes 2 months for a travel date.  Our plans will be to travel to review Ellie's file and meet with her.  Secure her and file for a court hearing.  We will leave country and return for court, during Court hearing  we will also be allowed to view Clyde's records and file for his Court Date.  Praying we are able to waive the 30 days of waiting for Ellie if not when we return for Clyde's Court Hearing pickup Ellie and apply for Ellie's passport.. During Clyde's court hearing we will apply for the 30 days to be waived. If not we will have to make four trips which we had not planned. This means additional funds for Ellie's and Clyde's adoption  SO far we have not sold ...