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Gennie-beanie

Tomorrow it has been 6 years since my daughter Gennie's passing.   My heart dreads this day. A day I wish I could erase.  I hate cystic fibrosis.  A disease which I knew little about besides meds, therapy and medical appointments.  Quickly I found out this disease can take a child from giggles to her grave.

My baby girl was only 3 years old
 Just a baby waiting to grow.  She held her first tomato just the day before.  That week before hunted Easter eggs and her basket still full of candy. Her bunny laid still on her bed.
As if the wind wisp her out of arms like a balloon drifting to heaven.  Helpless us how I felt as I handed her to paramedics.  Watching helplessly. 
I ask god many nights clear the moments of this day. Six years later I still hear her giggles and her bunny now sits on a shelf.
I've been ask why I allowed myself to love a child that was dying.  Never once did I actually think she would die and c.f. was this evil of an disease.   I've been questioned still questioned why adopt a sick child.
Sage now name Greyson is a sick boy.  Our son.. We fell in love with him instantly like we did Jake and Gennie.  Something about him and each if oue adopted children.  We felted inside they were meant for us to love them.  Someone ask why add grieve to your family again?? Why disable or sickly children?  This can make any person defensive or what to argue.  Turning away and not answering back is not
 me. 
Sometimes people who have not adopted or care for a child with a disability would understand.  Adopting a child any child it is not easy.   Adoption should not be of pity or that you are saving a lost orphan.
Some nights I sleep little, eat last and read the same books over and over.  I sing to my kids and I can not carry a tune.
I am where I run from super market to super market in search of unicorn and catacorn cereal. I've learned pouring another cereal in an empty box does not trick my kids.  Our kids are smart.
Some nights I've talked to several of my grandkids calling to say good night to our younger kids.
I learned wach of our children love different jelly.  Some like bread some bagels.  Each different, each unique, each perfect. 
Tomorrow I will rise when I want to sleep the day away. Pull up the blanket and sleep.  Tonight I'll buy donuts, sprinkles and all .  Tomorrow I'll drink my tea and  watch our children get a sugar buzz from donuts. 

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